LGBT Palliative Care Survey for Attorneys
The lesbian, gay, bisexual, and transgender (LGBT) community has a long history of experiencing discrimination and stigma in many arenas, including health care and social services. We are conducting a study to learn about the experiences of LGBT persons and their family and friends with palliative care and hospice programs. The goal of this study is to examine the ways in which their care is discriminatory, disrespectful, or inappropriate based on their sexual minority status. Study findings will be used to develop and disseminate policy and practice remedies.
Participation in this study is voluntary. If you do participate, you have the option of remaining anonymous. If you choose to share your identity, your responses will be confidential. Study findings will be reported in the aggregate and it will not be possible to identify individual respondents or employers. We expect that the national sample will include several hundred hospice and palliative care respondents from social work, medicine, nursing, chaplaincy, administrators, and elder law attorneys.
The questionnaire should take about 15 minutes to complete. The questions are about: providing services to LGBT clients; staff education and training in providing services to LGBT clients; institutional policy about non-discriminatory LGBT services; knowledge about working with LGBT clients in palliative and end-of-life care; provider awareness of disparate care to LGBT patients and families, including care that is different, inappropriate, disrespectful, abusive, or neglectful because of sexual minority status; and disparate or disrespectful treatment of patient proxies, surrogates, family members, or friends. You may skip any questions that you don’t want to answer.
The risk of participation is very minimal. You may experience minor discomfort when answering certain questions. You may skip any questions you prefer not to answer and you may exit the questionnaire website at any time. While there will be no direct benefit to you, your participation will contribute to understanding the experiences of LGBT patients and families in hospice and palliative care, and to developing recommendations for improved practice, policy, staff training, and research involving the LGBT community. There is no compensation for participation.
If you choose to participate in this study, you may access the online survey here:
https://bit.ly/2DZt6Nr
If you have any questions about your rights as a participant in a study, you may contact the Institutional Review Board at Yeshiva University, at 718-430-2776 or at IRIS-Support@Einstein.yu.edu. You may also contact the researchers at their email addresses below.
Thank you.
Gary L. Stein, JD, MSW
Professor
Wurzweiler School of Social Work
Vice Chair, Social Work Hospice & Palliative Care Network
Yeshiva University
glstein@yu.edu
Cathy Berkman, PhD, MSW
Associate Professor & Director, Palliative Care Fellowship
Graduate School of Social Service
Fordham University
berkman@fordham.edu
David Godfrey
Senior Attorney
American Bar Association
Commission on Law and Aging
Washington, DC 20036
David.Godfrey@Americanbar.org
The lesbian, gay, bisexual, and transgender (LGBT) community has a long history of experiencing discrimination and stigma in many arenas, including health care and social services. We are conducting a study to learn about the experiences of LGBT persons and their family and friends with palliative care and hospice programs. The goal of this study is to examine the ways in which their care is discriminatory, disrespectful, or inappropriate based on their sexual minority status. Study findings will be used to develop and disseminate policy and practice remedies.
Participation in this study is voluntary. If you do participate, you have the option of remaining anonymous. If you choose to share your identity, your responses will be confidential. Study findings will be reported in the aggregate and it will not be possible to identify individual respondents or employers. We expect that the national sample will include several hundred hospice and palliative care respondents from social work, medicine, nursing, chaplaincy, administrators, and elder law attorneys.
The questionnaire should take about 15 minutes to complete. The questions are about: providing services to LGBT clients; staff education and training in providing services to LGBT clients; institutional policy about non-discriminatory LGBT services; knowledge about working with LGBT clients in palliative and end-of-life care; provider awareness of disparate care to LGBT patients and families, including care that is different, inappropriate, disrespectful, abusive, or neglectful because of sexual minority status; and disparate or disrespectful treatment of patient proxies, surrogates, family members, or friends. You may skip any questions that you don’t want to answer.
The risk of participation is very minimal. You may experience minor discomfort when answering certain questions. You may skip any questions you prefer not to answer and you may exit the questionnaire website at any time. While there will be no direct benefit to you, your participation will contribute to understanding the experiences of LGBT patients and families in hospice and palliative care, and to developing recommendations for improved practice, policy, staff training, and research involving the LGBT community. There is no compensation for participation.
If you choose to participate in this study, you may access the online survey here:
https://bit.ly/2DZt6Nr
If you have any questions about your rights as a participant in a study, you may contact the Institutional Review Board at Yeshiva University, at 718-430-2776 or at IRIS-Support@Einstein.yu.edu. You may also contact the researchers at their email addresses below.
Thank you.
Gary L. Stein, JD, MSW
Professor
Wurzweiler School of Social Work
Vice Chair, Social Work Hospice & Palliative Care Network
Yeshiva University
glstein@yu.edu
Cathy Berkman, PhD, MSW
Associate Professor & Director, Palliative Care Fellowship
Graduate School of Social Service
Fordham University
berkman@fordham.edu
David Godfrey
Senior Attorney
American Bar Association
Commission on Law and Aging
Washington, DC 20036
David.Godfrey@Americanbar.org
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